From A Bigger Life
Stoma forming surgery is a major life event for the majority of people. You will want to seek support both before and after your surgery to help learn how to manage your stoma and how to adapt your life to living a normal life with it. Your first point of contact will be your local Stoma Care Nurse, they will be able to advise and guide you with any questions or concerns you may have about living with a stoma.
There are many voluntary associations who are very active among different communities. They exist as a vital support network and information guide. They also have booklets of information that they will provide you with throughout the year.
There are online communities who provide very good information and support from people in a similar situation as yourself. There are many options available such as social media channels, online forums and Facebook groups. If one doesn’t work for you, try the next.
While these groups can be a great way to connect with other people who are in the same situation as you, they aren’t appropriate for receiving specific medical advice. There are no 2 people the same, if there is something that doesn’t seem right you should always go back to your Stoma Nurse as your first point of call.
While I was waiting to have surgery, I went on various websites to learn more about ostomies and j-pouches. One site that I found particularly helpful was www.j-pouch.org… More
Having major surgery and/or a long-term illness does not only change your body physically but it can also alter your state of mind…. More
We talk about daily life to show people that we can still have lives regardless of our stomas and other medical conditions….. More
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