I have been an ostomate since 2013, when I also started a blog Feeling Ostomistic to share my journey and lessons learned. In my blog I share my journey as a 26 year old facing terminal cancer with an ostomy and trying to help others along the way. In 2017 I launched The Ostomistic Life, a free online magazine for young ostomates.
In between working on my blog and my online magazine, I am often watching Netflix or sleeping. I sleep a lot due to my pain and medications, I am on high doses of pain meds for my cancer and tumours. I’ve been unwell the last 3 weeks and have slept 90% of the day. But I have also been doing mini bucket list adventures when I’m not unwell and able to get out and about, it gives me a sense of a thrill to be doing stuff I’ve only imagined for years! I try to live life to the fullest each day and some days that means sleeping.
My favourite pizza is Hawaiian which is pineapple and ham covered in cheese, I miss eating it since my ostomy surgery (pineapple causes me issues now) but I do order it still and pluck off the pineapple and get the juice and smell still… but another is called the Aussie where you have cheese, bacon, egg, onion on a tomato base.
My dream holiday would be visiting Canada and riding the train through the alps or a river cruise and see the mountains and glaciers. Ever since I chose Canada as a grade 6 assignment I’ve wanted to go!
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