Bringing comfort and clarity to the what, why and how of an impending Ostomy surgery.
Teenagers think about being in a relationship, going out partying and just living their life. Whilst this was all happening for them, it wasn’t happening for me when I was 16 years old. I was diagnosed with a disease (Ulcerative Colitis) that I never heard of and seemed to be getting more aggressive as the months went on
How can I get a better night's sleep? Sleep plays an important role in your physical health so it's really important to get a good night's sleep. Although you might not be able to control all of the factors that interfere with your sleep, you can adopt habits that encourage better sleep. Start with these 6 steps to better sleep.
A one piece or a two piece appliance? What is the best way to remove a bag? How do you dispose of a used bag? These are some of the questions I have had to answer over the years. Nowadays the internet is full of suggestions, so I have here attempted to “merge” the more useful ones into this single blog.
The first bit of advice that I would give to an new ostomate would be to that you have to weather the storm at the beginning. For me I found the beginning the toughest, I didn't even look at my stoma until a week after the surgery. You have so much new information to take in at the start it is very overwhelming.
I have been struggling with the fact that I will have an ostomy for the rest of my life. When I initially had surgery in 2011, the plan was always to use my j-pouch. Not once did anyone ever mention that I may have an ostomy forever. When these finicky fistulas got in the way, it became clear that I may never be able to use my j-pouch.
Self Pity… I despise that term; or maybe it’s the term “pity” in general. More likely it’s the latter, whenever people ask me about the disease or the permanent ostomy bag on my stomach, the expression and tone of the conversation always turns to that pitying look and demeanour.
Whenever your thinking about what to say to children in your family it very much depends on what age they are and how much information you have shared with them before you have gone into hospital. It really is an individual thing but our hints and tips will help you see what has worked for other people and you can choose what's best for your family.